“I think it’s because it’s a gynecological issue. People who have it are embarrassed to talk about it, and their friends are embarrassed to ask.”
Furthermore, one of Fowler’s doctor’s warned her, “women’s health gets the short end of the funding stick.” Ouch. Perhaps that is why no real cause or cure for endometriosis has been discovered, and the treatments available (surgery, hormones) have made minimal advancement over the decades.
Another doctor warned Fowler “It’s not going to end your life, but it will take your life.” Well, great. What’s a gal with endometriosis supposed to do? Lie around in crippling pain, fretting over missed work days and strained personal relationships? Unfortunately, that’s exactly what a lot of endometriosis patients have to do, and plenty of it.
Fowler is looking for some comfort and solidarity. She is seeking her tribe. She knows there are many women in the Humboldt area who will benefit from each other’s experience and support, and she is endeavoring to start Humboldt County’s first endometriosis support group. It hasn’t got a name or a structure in place yet, Fowler is going to let that be part of the group effort.
If you would like to join Carrie Joyce Fowler in her mission to unite Humboldt’s endometriosis patients and either demand a cure or at least take solace in each other’s shared experience and mutual understanding, she invites you to check out her blog atwww.ironlotusblog.blogspot.com and contact her at firstname.lastname@example.org to help get a movement started.